As a global network, ENCA Partners are organisations who wish to collaborate to achieve the goals of ENCA and to provide support and advocacy to patients and families with paediatric rheumatic and musculoskeletal diseases or autoinflammatory diseases (RMDs).
Patient organisations, or informal networks and groups, who are primarily focused on paediatric RMDs may apply to be ENCA Partner Organisations.
ENCA Partners:
Germany (German)
Website: www.rheuma-liga.de
Categories: Patient Organisations
The Netherlands (Dutch & English)
Work Email: info@jeugdreumavereniging.nl
Website: https://jeugdreumavereniging.nl
Categories: Patient Organisations
UK (English, some printed documents also in Welsh)
Work Email: headoffice@lupusuk.org.uk
Website: www.lupusuk.org.uk
Categories: Patient Organisations
Uruguay
Work Email: reumatologiapediatricauruguay@gmail.com
Categories: Patient Organisations
The Netherlands (Dutch, with resources in Dutch, English, Turkish and Arabic)
Work Email: info@kaisz.nl
Website: www.kaisz.nl
Categories: Patient Organisations
Headquartered in USA but patients from all across the world (English)
Work Email: contact@systemicjia.org
Website: www.systemicjia.org
Categories: Patient Organisations