As a global network, ENCA brings together Partner Organisations that want to collaborate towards shared goals, supporting and advocating for children, young people and families affected by paediatric rheumatic and musculoskeletal diseases.
Patient organisations, informal networks, and support groups that provide support to patients and families affected by paediatric RMDs are welcome to apply to become ENCA Partner Organisations.
ENCA Partners:
Open Map
Juvenile Idiopathic Arthritis (JIA)
Categories: Patient Organisations
Paediatric rheumatic and autoinflammatory rare diseases
Categories: Patient Organisations
Juvenile Idiopathic Arthritis
Categories: Patient Organisations
Rheumatic diseases
Categories: Patient Organisations
All rheumatic diseases.
Germany (German)
Website: www.rheuma-liga.de
Categories: Patient Organisations
Immune mediated diseases
Categories: Patient Organisations
Rheumatic and musculoskeletal diseases
Categories: Patient Organisations
All rheumatological diseases
Categories: Patient Organisations
All rheumatic diseases
Categories: Patient Organisations
JIA and related childhood rheumatic diseases
Categories: Patient Organisations
Juvenile Idiopathic Arthritis (JIA)
Categories: Patient Organisations
Juvenile Idiopathic Arthritis (JIA)
The Netherlands (Dutch & English)
Work Email: info@jeugdreumavereniging.nl
Website: https://jeugdreumavereniging.nl
Categories: Patient Organisations
Juvenile Idiopathic Arthritis (JIA) and associated diseases
Categories: Patient Organisations
All rheumatic and musculoeskeletal conditions
Categories: Patient Organisations
Lupus and associated autoimmune conditions
UK (English, some printed documents also in Welsh)
Work Email: headoffice@lupusuk.org.uk
Website: www.lupusuk.org.uk
Categories: Patient Organisations
Paediatric Rheumatic diseases
Categories: Patient Organisations
Paediatric Rheumatic diseases
Categories: Patient Organisations
Childhood rheumatic diseases.
Uruguay
Work Email: reumatologiapediatricauruguay@gmail.com
Categories: Patient Organisations
Children and young adults with rheumatic and auto immune related diseases.
Categories: Patient Organisations
Juvenile Idiopathic Arthritis (JIA)
Categories: Patient Organisations
Autoinflammatory diseases
The Netherlands (Dutch, with resources in Dutch, English, Turkish and Arabic)
Work Email: info@kaisz.nl
Website: www.kaisz.nl
Categories: Patient Organisations
Systemic JIA, Still’s Disease, Macrophage Activation Syndrome
Headquartered in USA but patients from all across the world (English)
Work Email: contact@systemicjia.org
Website: www.systemicjia.org
Categories: Patient Organisations
All rheumatic conditions
Categories: Patient Organisations
Rheumatic conditions (in people aged 0 – 30)
Categories: Patient Organisations
Arthritis and related MSK conditions
Categories: Patient Organisations
Rheumatic conditions in young people aged 16 to 30
Categories: Patient Organisations
JIA and Auto inflammatory diseases
Categories: Patient Organisations