ENCA

Who can join the ENCA network?

As a global network, ENCA brings together Partner Organisations that want to collaborate towards shared goals, supporting and advocating for children, young people and families affected by paediatric rheumatic and musculoskeletal diseases.

Patient organisations, informal networks, and support groups that provide support to patients and families affected by paediatric RMDs are welcome to apply to become ENCA Partner Organisations.

Together we aim to:

• Share and promote our common values and goals.
• Support each other and help strengthen our shared work wherever possible.
• Take part in opportunities offered through the network when we are able to, including opportunities to represent the patient and family voice at regional, national and international events.
• Join ENCA online events and the annual PReS Congress where possible, as important opportunities to connect, learn and share.
• Share ideas, experiences, good practice and useful resources, so that all partners can benefit and learn from one another.
• Help make the network more visible by including a link to the ENCA website on our own websites.

If your organisation would like to join the ENCA network, please complete the form below. By submitting the form, you are confirming that your organisation is eligible to join and will adhere to the guiding principles of ENCA. Please note that you must include a letter of support from the organisation and include the contact details of one individual (you may add more later).

Full legal name of your patient organisation *

Name Website of

Country *

Website *

Public Email *

This is the email address that will be displayed on the ENCA website. It is the one that members of the public can use to contact your organisation. Do not give a personal email address.

Which diseases, illnesses and conditions do you represent? *

Your Name *

First

Last

Personal Email *

This is the email address for your main contact. ENCA will not publish this, but will use it to send important information, newsletters and updates to you. You can add other email addresses of other people in your organisation later.

Your phone number

Please provide a contact telephone number for the main contact. This will not be published, but may be used by ENCA to administer our WhatsApp group.

Letter of Support *

• I will email a letter of support from my organisation to mail@encanetwork.org

Do you agree to the ENCA Terms of Reference? (See below) *

• Yes - I agree

Submit

• Share and promote our common values and goals.
• Support each other and help strengthen our shared work wherever possible.
• Take part in opportunities offered through the network when we are able to, including opportunities to represent the patient and family voice at regional, national and international events.
• Join ENCA online events and the annual PReS Congress where possible, as important opportunities to connect, learn and share.
• Share ideas, experiences, good practice and useful resources, so that all partners can benefit and learn from one another.
• Help make the network more visible by including a link to the ENCA website on our own websites.