ENCA

Who can join ENCA?

As a global network, ENCA Partners are organisations who wish to collaborate to achieve the goals of ENCA and to provide support and advocacy to patients and families with paediatric rheumatic and musculoskeletal diseases or autoinflammatory diseases (RMDs). 

Patient organisations, or informal networks and groups, who are primarily focused on paediatric RMDs may apply to be ENCA Partner Organisations. 

ENCA Partner Organisations will:

• Share the values and goals of ENCA.
• Support and promote the work of ENCA.
• Take part in opportunities offered to them by ENCA wherever possible, including representing the patient voice at regional, national and international conferences with the support and endorsement of the ENCA Board.
• Attend and participate in the annual PReS Congress and online Event wherever possible.
• Share best practice, ideas and resources with ENCA, to support other Partners.
• Publish a link to the ENCA website on their own website.

If your organisation would like to join ENCA, please complete the form below. By submitting the form, you are confirming that your organisation is eligible to join and will adhere to the guiding principles of ENCA. Please note that you must include a letter of support from the organisation and include the contact details of one individual (you may add more later).

Full legal name of your patient organisation *

Country *

Website *

Public Email *

This is the email address that will be displayed on the ENCA website. It is the one that members of the public can use to contact your organisation. Do not give a personal email address.

below) and you

Which diseases, illnesses and conditions do you represent? *

Your Name *

First

Last

Personal Email *

This is the email address for your main contact. ENCA will not publish this, but will use it to send important information, newsletters and updates to you. You can add other email addresses of other people in your organisation later.

Your phone number

Please provide a contact telephone number for the main contact. This will not be published, but may be used by ENCA to administer our WhatsApp group.

Letter of Support *

• I will email a letter of support from my organisation to mail@encanetwork.org

Do you agree to the ENCA Terms of Reference? (See below) *

• Yes - I agree

Submit

• Share the values and goals of ENCA.
• Support and promote the work of ENCA.
• Take part in opportunities offered to them by ENCA wherever possible, including representing the patient voice at regional, national and international conferences with the support and endorsement of the ENCA Board.
• Attend and participate in the annual PReS Congress and online Event wherever possible.
• Share best practice, ideas and resources with ENCA, to support other Partners.
• Publish a link to the ENCA website on their own website.